Module summary

Conclusion

I have no regrets about what I am doing; I have moments full of anger and self-doubt, but no regrets.

Some of the key points covered in this module include the following:

  • Although caregiving will vary according to each person and home situation, it will likely include a combination of physical and medical tasks, coordinating services, and emotionally supporting the person who is ill.

  • Caregiving at home is a very large undertaking and is not always possible for everyone. It is okay if a family is not able to do this. You may still be able to provide some care in an alternative location such as a long-term care or hospice.

  • Asking family and friends to help with home care tasks can provide some relief and let you find some time for yourself. 

  • A healthcare provider can help review the person’s needs and to decide what equipment, supplies, and services may be necessary to help keep everyone safe in the home.

  • Which programs and services are available often depends on where the person who is ill lives but generally consist of three types of services: provincial, territorial, and federal health services; services provided by not-for-profit or charitable organizations; and private services for a fee.

  • Many churches, synagogues, mosques, and other places of worship offer support to caregivers. Some may be able to temporarily assist with financial hardship by paying a utility bill or giving grocery gift certificates.

  • Some financial assistance programs and benefits are available through the federal and provincial/territorial governments.

  • In preparing to provide care at home, it is a good idea to do an assessment to see if changes can be made to the living space or lifestyle to enhance safety and comfort. This may include acquiring supplies and equipment specific to the person’s needs.

  • Other caregiving situations may require additional consideration: when caregiving will happen over a long period of time; long-distance caregiving; and emergency situations that may arise.