Chapter 2: Who’s on your team?
I felt so very alone and overwhelmed, but the visiting nurse told me about some local programs.
1. Provincial, territorial, and federal health services. These include hospital and community services such as home care. Each province offers different programs and services. The federal government is responsible for providing care to First Nations people living on reserves.
a. Caregiver associations.
b. Provincial palliative care associations.
c. Local palliative care organizations and societies. *Check with your healthcare team to see what palliative care programs are available in your area.
d. Organizations focused on a specific disease, such as the Canadian Cancer Society, Heart and Stroke Foundation, Alzheimer Society of Canada.**
*If you aren’t already connected, ask your health team for local contact information.
**See links below for more information.
3. Private services. These are available for a fee to the person living with illness and their family. Some of the costs may be covered by your private insurance provider, if applicable.
*In some provinces or territories, you may be able to receive a stipend to look after a someone who is ill at home if the province or territory is unable to send a home care provider.
Words of wisdom
Community Paramedics and Assess, Treat and Refer Programs
In some regions, paramedics are also supporting people living with illness in the community through community paramedicine programs. In most cases, people are referred to community paramedics by their primary physician or specialist. Some provinces also have assess, treat, and refer programs for paramedics to support people with palliative symptoms at home instead of transferring them to the emergency department. Ask your home care or palliative care provider about what supports are available in your community.
For a list of programs and services available in your area, visit the Canadian Virtual Hospice Programs and Services page.