Chapter 1: What am I getting myself into?

Taking a caregiver inventory

The palliative care expert says
Description to come (3:22)Video transcript

She had a lot of anxiety, mostly about dying, but she also worried about me – thinking that she was the cause of my grief and “using up” my life.

Before you start providing care, consider taking a self-inventory by thinking about some of the questions below. You are encouraged to have conversations with the person who is ill (and other family members, if appropriate) to try to set expectations, and to discuss your role and the involvement of other family, community, and healthcare providers. The questions below will help you consider other details needed for at-home caregiving. Click each category to view some questions in the caregiver inventory.

Thinking about these things and being clear on your role can help you understand what to expect as a caregiver.

Caregiving at home is a very large undertaking and is not always possible for everyone. It is okay if a family or individual is not able to do this. You may still be able to provide some care in an alternative location such as a long-term care facility or local hospital. Talk to a healthcare professional to see what other arrangements can be made and what aspects of care you can help with.

Helpful resources
You can download and print the full caregiver inventory from above in case you want to take it away to reflect or share it with others who may be involved in caregiving or decision-making.