Chapter 1: What am I getting myself into?

Taking a caregiver inventory

The palliative care expert says
Description to come (3:22)Video transcript

She had a lot of anxiety, mostly about dying; but she also worried a lot about me – being the cause of my grief and “using up” my life.

Prior to beginning, consider taking a self-inventory by openly and honestly answering the questions listed. Have conversations with the person who is ill and other family members, if appropriate, to set expectations; discuss your role and other family, community, and healthcare involvement; and other details and considerations for at-home caregiving. Click each category to view some questions to consider.

Thinking these things through and being clear on your role, what resources are available, and how care needs may change can help you understand what to expect from your caregiving role.

Caregiving at home is a monumental undertaking and is not always possible for everyone. It is okay if a family or individual is not able to do this. You may still be able to perform some parts of care from an alternative location such as a long-term care or palliative care facility. Talk to your healthcare professional to see what other arrangements can be made and what aspects of care you can help with.

Helpful resources
You can download and print the full caregiver inventory from above in case you want to take it away to reflect or share it with others who may be involved in caregiving or decision-making.