The following resources will provide additional helpful information on the following topics.

 

Canadian Virtual Hospice

CaringTogether.life - A platform designed to educate, support and empower parents

AskAProfessional.ca - A web-based resource where you can ask a professional about terminal illness, end-of-life care, loss and bereavement. 

For Parents and Families.

RogerNeilsonHouse.ca - A pediatric palliative care hospice located in Ottawa that supports families through perinatal and infant loss. 

CenterForLoss.com - An organization dedicated to helping people who are grieving and those who care for them dedicated to helping people who are grieving and those who care for them. 

PailNetworkSunnybrook.ca - The Pregnancy and Infant Loss Network is an organization families turn to for support and hope in dealing with pregnancy and infant loss. 

Silent Birth: When a Baby Dies After 20 Weeks of Pregnancy - A booklet published by Pail Network Sunnybrook; bereaved parents and healthcare professionals guide you through what to expect when experiencing stillbirth. 

PerinatalHospice.org - A website that supports families who are continuing their pregnancy when their baby’s life is expected to be brief. 

The Prenatal Bombshell -  A book by Stephanie Azri and Sherokee Ilse that gently supports families through the journey of continuing a pregnancy following a life-limiting diagnosis (note:  the link is to Google Books  which includes table of contents and preview only).

CaringBridge.org - An organization working toward a single vision: a world where no one goes through a health journey alone

A Gift of Time: Continuing Your Pregnancy When Your Baby’s Life Is Expected to Be Brief - A gentle and practical guide for parents who are, or are considering, continuing their pregnancy following a life-limiting diagnosis (note: the link is to Perinatal Hospice and Palliative Care which offers a book abstract, table of contents and information about the authors).

Waiting with Gabriel: A Story of Cherishing a Baby’s Brief Life - A memoir about prenatal diagnosis, continuing a pregnancy, and embracing a baby’s life (note: the link is to Perinatal Hospice and Palliative Care which offers a book review). Read an excerpt of the book here. Also available in Italian.

Grief after twin or multiple loss

 

For healthcare providers

CenterForLoss.com - An organization dedicated to helping people who are grieving and those who care for them dedicated to helping people who are grieving and those who care for them. 

PerinatalHospice.org - A website that supports families who are continuing their pregnancy when their baby’s life is expected to be brief. 

ResolveThroughSharing.org - An organization that provides education for medical staff in perinatal and infant loss. 

KidsGrief.ca - A Canadian Virtual Hospice free online resource  that helps parents support their children when someone in their life is dying or has died. It equips parents with the words and confidence needed to help children grieve life’s losses in healthy ways. 

Handbook of Perinatal and Neonatal Palliative Care: A Guide for Nurses, Physicians, and Other Health Professionals - A guide for nurses, physicians, and other other professionals (note: a direct link to Springer Publishing).  

Perinatal palliative care as an essential element of childbearing choices - American Academy of Nursing / A model of care for parents who choose to continue their pregnancies following diagnosis of a life-limiting prenatal condition (note: link to .pdf).