Module summary


The following resources will provide additional helpful information on the following topics.


Canadian Virtual Hospice - A resource designed to educate, support and empower parents - A web-based resource where you can ask a professional about terminal illness, end-of-life care, loss and bereavement.

Perinatal and infant loss: Getting support from people you know - one page take-a-way resource (PDF)

Perinatal and infant loss: Ideas for memorializing your baby - one page take-a-way resource (PDF) 


For parents and families - A pediatric palliative care hospice located in Ottawa that supports families through perinatal and infant loss. - An organization dedicated to helping people who are grieving and those who care for them dedicated to helping people who are grieving and those who care for them. - The Pregnancy and Infant Loss Network is an organization families turn to for support and hope in dealing with pregnancy and infant loss. 

PAIL Pamphlets:

Silent Birth: When a Baby Dies After 20 Weeks of Pregnancy - A booklet published by Pail Network Sunnybrook; bereaved parents and healthcare professionals guide you through what to expect when experiencing stillbirth. 

Supporting Siblings After Pregnancy or Infant Loss - Bereaved parents and professionals created this booklet to guide you as you support through a pregnancy or infant loss that has happened in their family or to a loved one. - PALS supports courageous mamas pregnant again after a loss through connection with peers, awareness in the community, education of providers, and advocacy around the world. - A website that supports families who are continuing their pregnancy when their baby’s life is expected to be brief. 

The Prenatal Bombshell -  A book by Stephanie Azri and Sherokee Ilse that gently supports families through the journey of continuing a pregnancy following a life-limiting diagnosis (note:  the link is to Google Books  which includes table of contents and preview only). - Is an international network of trained photographers who provide free remembrance photography for parents suffering the loss of a baby. - An organization working toward a single vision: a world where no one goes through a health journey alone


For healthcare providers - An organization that provides education for medical staff in perinatal and infant loss. - A Canadian Virtual Hospice free online resource that helps parents support their children when someone in their life is dying or has died. It equips parents with the words and confidence needed to help children grieve life’s losses in healthy ways. 

Handbook of Perinatal and Neonatal Palliative Care: A Guide for Nurses, Physicians, and Other Health Professionals - A guide for nurses, physicians, and other other professionals (note: a direct link to Springer Publishing).  

Perinatal palliative care as an essential element of childbearing choices - American Academy of Nursing / A model of care for parents who choose to continue their pregnancies following diagnosis of a life-limiting prenatal condition (note: link to .pdf).